REPOSTING as it was buried! (idk if i’m allowed to do that sORRY!)
I am so confused, and overwhelmed
i am not sure where to even start with this post, but i have fewer and fewer people in my life who are interested in listening, or actually caring. i just need to get it out!
i am self identified autistic person (or suspecting autism), i want to get properly assessed soon. i’m coming into some extra funds and i will be able to afford the steep cost. but i am experiencing imposter syndrome. i’m going to share some things about myself, but know i’m leaving so much out because there’s just too much.
the way i move and exist in the world has always bothered people. so at around 5 years old i started to adapt, painstakingly, sacrificially, and sleepily. i got good at it too! as a young girl i was shy, marched to the beat of my own drum, and a brat. if this sounds familiar to you, you probably lived it too. looking back all of the signs were there, and i hold a lot of grief and mourn my younger self because she really needed to be seen.
i never made a true friend until grade 5, i spent lunch and recesses alone collecting rocks. the kids i knew “played” with me, but almost like a puppy. i never understood what they wanted from me. i never understood any jokes. my teachers never liked me either, i would yawn loudly in class, rock back and forth, vocally stim, and constantly bother people but i could never understand why they disliked me so much. i couldn’t understand why i could yawn at home but not at school, i was called rude, annoying, disrespectful, and shy. i’m using yawning loudly as an example because there were a lot of things i would do to regulate myself that i could do at home but not at school. i would tie my sweater around my head tightly so i could focus on lessons as the lights were too bright and the room smelled too much and the hum of the electricity in the room was deafening. my teachers didn’t like it when i did that and i would do poorly on tests as i had such a hard time paying attention in class without the buffer. there are a million things in the scope of accessibility services that could’ve been done so i wouldn’t have been as disruptive to other students. and if those things would have been in place maybe i wouldn’t have learned so early on that my existence is upsetting. i was bullied from grade 1-12. i started using negative self talk about myself in grade one, and stopped talking at school until grade 3/4.
my home life was full of constant spinning, laying on floors when possible, putting heavy objects on top of me (coffee tables, chairs, heavy textbooks), farming blankets (picking the fluff off of them and creating a fluff farm but it got problematic lmao), rocking, vocal stims, and speaking every thought i had during the day that i held in. sometimes i would just come home and fall asleep, which i’ve been told is strange for a 7-8 year old who is supposed to have so much energy. i was always just so tired. the smallest things would lead to meltdowns, hair brushing, touching dry towels with dry hands, blenders, vacuums, smells. i could probably explain a million more things but this post is already too long.
high school was tough, i got into substances because isn’t it so amazing that you can drink something or smoke something and suddenly its easier to just, be? i’m happy to announce i’m sober now but, god it was rough. i made a lot of friends during the era of substances but those friendships were fiercely codependent on mutual annihilation through misery needs company. a lot of bad things happened though, (SA), and i never dealt with it because i didn’t understand it. this is relevant in a moment. BUT! i got three solid friends though, so that’s a wonderful thing to come out of high school.
i also was able to hold down a retail job for seven years, my manager was so relaxed? i guess? (or barely there) so i was able to run around the block when i needed to, go sit in a dark room for 5 mins when i needed to, and i actually got really good at speaking to customers and just random people? i got too good though, it took everything out of me to do 6 9-5 shifts every week. i stopped hanging out with friends, or doing anything at all. including showering, brushing my teeth, etc. dry shampoo and gum and perfume became so important. i lost friends because they didn’t understand why i was so tired, they seemed to always be able to do so much after work. and be people.
in a sick sort of domino effect everything came crashing down a couple years ago, my father died, i had dissociative episodes, every awful thing that was said or done to me came crashing down on me in a way that knocked me entirely on my ass. i had to stop working, i had to stop everything. panic attacks, night terrors, depression, it was everything all at once, and it still is.
i’m in therapy now, i am also in college, i want to be a writer one day. i’m doing a little bit better. and i want to get assessed so i can maybe have some closure or have the piece of paper that says the diagnosis so people believe me. so my friends believe me. they dismiss my autistic struggles entirely and consistently. i just don’t talk about it anymore. i cover it up. and i don’t want to anymore. i want to be me. i want to be seen and heard and not feel so much shame and embarrassment. when
i’m having a hard time because of it i am the furthest thing from validated, i’m called annoying, avoidant, and weird. these all too familiar words hurt my feelings. if i’m not doing well they don’t believe me, if i’m doing too well they especially don’t believe me. i’m not gonna perform my lowest moments just to be believed either. i just- i know it’s probably not that deep.
i love my friends, they do care about me. i just feel like they don’t know me at all sometimes. i guess i both wanted to rant and also ask if getting assessed is a good idea for me, if it will help with some of these problems i’m having. chances are it might not change anything! but if i can call myself autistic proudly, instead of all of the horrible words i’ve been given for my entire being, i think i would be okay with that.
anyways thank you for reading this long essay, i really appreciate it, i have a hard time putting into words what exactly my problem is. i just want to be seen i suppose.
thank you!