Denied PIP today for schizoaffective disorder, autism and adhd. 0 points for everything. Despite extensive evidence and input from CMHT. Despite constant changes in mood like hypomania and depression. Despite psychosis that was extremely severe and could happen again.

In the letter the response mentioned how they have concluded i’m good with money and pay my direct debits on time. That’s not true and forgot to mention the £10,000 loan debt I got myself in with a past friend when not well. They said because I have a levels and am attending university I can follow a recipe which I don’t think you should use education in this. So what that i’m in university, doesn’t mean it’s not a struggle. Also says I attend university when not on placement and I seriously do not attend university at all.

I still might not get PIP but those little lies are annoying. People talk about an MR, how do I do that? And how do I voice these concerns that these aren’t true? Can I write a letter with a MR? And is there a time limit to do this? I didn’t get the form you can ring for after the assessment, do I need this for an MR?

I worked at Amazon for 3 weeks
Only went in 2 days as I was really sick

I then decided I'd want to care for my dad and quit Amazon.

I have severe anxiety and autism. And due to this. My resignation finalised on Monday. But I haven't told UC Yet as I'm really scared about what would happen.

I have a phone call appointment today about how work is going. Could I share it with the person on the call there and ask them to help me update my change of circumstances. Will they be mad I didn't report it straight away. I'm so scared right now and I don't know what to do with my life. Any help on here would be greatly appreciated

I'm scared I'd get a sanction and then I don't know what would happen. I'm making a doctors appointment today for next week so I can find out what's going on with me.

Any help would be appreciated like asked. Many thanks

Hello, my name is William and this is my first time ever asking for advice on anything like this before, so I don't know what to expect. Long story short (kinda), in December 2025 I sent off my Capability for Work questionnaire and have been uploading monthly fit notes ever since. It took around 8 to 9 months to finally get my assessment, which was a grueling, honest, and in-depth telephone call lasting over an hour. About 5 weeks later, I got the crushing news that I had been found "Fit for Work". It has been an incredibly hard pill to swallow, and I am struggling to wrap my head around how a decision-maker could reach that conclusion based on what I told them about my severe daily limitations.

What was detailed in that assessment consists of a severe diagnosed anxiety disorder rooted in deep childhood trauma, alongside deep depression, self-hygiene and food neglect, and active suicidal thoughts. They were also told that I suffer from extremely unpredictable and unreliable sleep issues, which makes it impossible to guarantee if I can function in the morning—something that completely prevents me from keeping to a strict work timetable.
Lastly, they were informed about my extreme agoraphobia. I cannot safely or reliably leave the house almost at all. Even trying to go to familiar places or being with a familiar person triggers a full body panic attack with severe physical symptoms. I can have this happen even when i feel safe at home! It has gotten so bad that it is no longer just psychological; it physically harms me and is dangerous.

One more thing to add is that I stressed to them SO much during the assessment about how the Universal Credit system alone has severely deteriorated my mental health. Just dealing with short health phone meetings and updating my monthly fit notes has been way too much to handle. The fact that they looked at all of this and genuinely think I’m fit for work is crazy. They know full well that forcing me to look for work would be a direct risk to my health and my life. There are many other daily struggles I mentioned during the assessment, of course, but I feel these are the most critical things to highlight here.

Anyways, to whoever is reading this and has gotten this far, now you know my situation, I need to bring up what I need advice on. Because I am now viewed on their system as "Fit for Work", I do not know how the fit notes even work and how they are accepted. I have requested a Mandatory Reconsideration today, and if the decision remains the same I will be taking it to a tribunal. Whilst I wait for either of these, I want to guarantee that there isn't any gaps between my fit notes. This is strictly for future evidence but also to make sure if I am awarded LCWRA, that I would be backdated all the way, as I truly believe that is the correct decision and place for me.
But the issue is that now I am seen as Fit for Work, there isn't any place to submit a fit note. Furthermore, if I do use the "Report a Change" way, I am afraid that it will just start a new health journey, send out a new WCA form, and any new fit notes won't even count towards my original case. I don't know if that is silly of me to think it works that way, but I am massively an overthinker and careful, so it wouldn't surprise me. But I think it makes sense.
So if anybody knows exactly how it works in this scenario, and also if anybody has ANY advice at all involving anything you've gathered from reading this, I will gladly accept it.

Thank you to anyone who has spent the time to read this, especially to whoever has reached out to help me, it means a lot!

I have a face-to-face PIP assessment booked in London at 2:30pm, but I have another appointment at 4pm. Are assessments usually on time, and how long do they typically last? Am I cutting it too fine to make my other appointment?
If I reschedule, how long are people generally waiting for a new assessment date? I don’t want to delay my claim unnecessarily.
Also, what should I expect during the assessment? What sort of questions do they ask, and how is best to prepare? Any tips on what to bring, how to explain your difficulties, or things you wish you’d known beforehand would be appreciated. I’ve read quite a few horror stories, so I’d be grateful to hear about recent experiences. Thanks!

I had a Universal Credit claim review last year, during which I submitted all the evidence and bank statements requested. The review was completed, and my claim continued as normal. I didn't realise that I still needed to update my savings myself. I thought the reviewer had updated everything based on the information I'd provided during the review.

Recently I've realised that my total savings have been over the £16,000 threshold since late 2025. Due to a lot of anxiety and stress throughout the past year, I hadn't been properly monitoring or keeping track of the combined balances across my accounts.

As soon as I realised, I reported the change to Universal Credit. I now have an appointment later this week to provide further evidence.

I can provide bank statements showing exactly when my savings first exceeded £16,000 and that they've remained above the threshold since.

I'm extremely worried about what might happen next. I understand there may be an overpayment that I'll need to repay, but I'm particularly concerned about whether this could lead to anything more serious.

Has anyone been in a similar situation, or does anyone know what I should expect?

I just received the outcome of my PIP review that began in June 2024. Sharing the timeline here for anyone else that might be feeling anxious about the length of time reviews are taking.

'24 June - Received and returned the PIP review form.

~every 2-3 months - DWP text they will process review when they can.

'26 July - Text from 'Health Assessment Advisory Service' they are managing my PIP assessment and might contact me.

'26 Aug - I receive a phone call from the advisory service and ask them to call back later as it was an inconvenient time. I don't hear from them again after this.

'26 Sep - DWP text they've received report from health professional.

'26 Oct - DWP text PIP review is complete, I receive my new award letter about a week later.

This was my first PIP review. I had previously been given a 3 year award of Enhanced/Enhanced following an initial assessment of 0/0 and a failed mandatory review.

My ability to perform tasks has not changed significantly since the initial award but I have been formally diagnosed with Autism. I didn't provide any new evidence.

Following review I've now been given a indefinite Enhanced/Enhanced award.

Although the outcome is the same what I've been awarded points for has changed significantly, I'm not going to be challenging anything but I think it's interesting. I have 0s in some 'daily living' activities I previously scored points in but my overall 'daily living' score is >10 points higher than it was previously. I previously scored 12 in mobility for planning and following journeys which is now 0. I previously scored 0 in mobility for standing and walking and now score 12.

I don't get why they refuse to send it?

I get maintenance loan of £12577 and a part of that is sse of £4582, I also told them my course finishes in June.

Is this really the right amount deducted? I thought it would’ve been £700

Hi everyone, I recently submitted a pip online claim, they then gave me the paper version to fill out so my partner filled that out for me and now I’ve got a face to face appointment. Why? I’m worried as others I know haven’t needed to do face to face appointment.

I'm due to turn 35 this month am I entitled it the one bed LHR then in my area as I won't be under 35 then anymore. As rightnow I'm getting the shared accommodation rate for a one bed flat not the full one bedroom rate. If so do I report it to universal credit or do they do it automatically. Also I'm due to be paid Sunday the 1st will it go in Friday ( my first payment with UC)

Hi all, I’m just wondering if this has happened to anyone else.
For my last UC phone appointment, I waited hours for the call, but nobody rang me. I left messages in my journal but didn’t receive any replies. Then, a day later, the appointment was marked as “attended” and a new one was booked for the following month.

The new appointment they booked for me was supposed to be yesterday. I was waiting for this one because I really needed to speak to my work coach, as she never replies to my journal messages and I haven’t been able to speak to her in any appointments.

I also called the UC helpline, but I was just told to leave messages in my journal, which I’d already done. A few hours later, yesterday’s appointment was marked as “attended” again, even though nobody called me. I’m guessing another appointment will be scheduled.
I’m not complaining; I’m just genuinely curious as to why this keeps happening. Has anyone else experienced this?
Thank you!

Right people I need help so I’ve been paid pip £626.80 but I’ve had no letters and no calls I only applied 16 days ago what dose this mean can you help me

Hi All, hoping someone can help me with this query. I am currently an appointee for my mother and have a motability car for her through the scheme. The vehicle was received in April 2026. The vehicle is an over 25 vehicle which I solely drive for my mum’s care, no one else is able to be insured on the vehicle due to age and my mum does not drive.

I have moved into a new job role which requires me to have a company car, I would like to return my motability car as I have no space for two vehicles and the company car can be used for personal use so I will use that vehicle for my mum instead.

Can anyone advise whether motability allows for early termination of lease and whether my reasoning for terminating the lease are valid?

Hi, I finally got awarded pip.

Can someone please help with what my next payment date is.

Ironically got points for difficulty managing money....

Hi everyone,

I’m just trying to get an idea of current PIP tribunal waiting times in England.

For those still waiting for a hearing, how long have you been waiting so far since submitting your appeal on the HMCTS website?

And for those who have had their hearing recently, how long was it from submitting your appeal on the website to actually having your tribunal hearing?

I know waiting times can vary, but I’d really appreciate hearing about people’s experiences recently, as I’m trying to get a realistic, rough idea of the wait times.

Thanks!

Hello, I had my WCA today with a Nurse from Maximus. She came across really lovely. I have both Mental Health and Physical Conditions - my assessment lasted about 45 mins and we only talked about the mental side of things. She said she thought she had enough without needing to go into the physical conditions. She said she would go and check with someone senior and give me a call back to let me know if they needed to continue the assessment or not. She called me back within minutes and said they had everything they needed. Is this a good sign?
How long has everyone waited for their outcome after assessment with Maximus? I know there isn’t a set timeframe.

thanks all.

I did a change of circumstances because my condition has improved, I explained how it had improved on the form.

They’ve awarded me the exact same points again and extended the length of the award.

Must have been a paper based assessment because they didn’t talk to me at all.

What do I do now?

How long did everyones MR take, please?

Very grateful to get the points I have but I’ve written to the DWP after receiving my PA4 as it’s not quite right and doesn’t reflect my reality fully. TIA!