For about two weeks I've taken a photo intending to communicate here but when I open the app I feel intimidated. I'm still pushing and working out, actually down 99lb but I feel like shit. You guys are so strong and the most I can do is a forced smile right now?

But I'm still here and you guys really keep me going. Thank you guys for being strong for me when I can't. I think with my birthday coming up I get in my head about what I thought life would be? But I'm not doing bad

Hope all is well Friends ♿✊🏿🫂💪🏿

It’s weird. I’ve had constant chronic pain for five years, so it should be mentally engraved into my mind, but oftentimes when I dream about myself, I don’t feel the pain; I feel normal. Technically, even if I am sleeping, I’m still in constant pain, but my brain doesn’t process that I am in pain. I’m just curious if anyone else feels this way.

Why you ask? For so long my doctor’s have been telling me that I’m too young to be in chronic pain as if I’ve been making it up, all of my imaging is lying, and I made or bribed 5-6 physicians to perform surgery on me. Not only is the age conversion annoying but it diminishes my experience with it. Why do “doctors” need to say “if you were 65-80 I’d definitely adjust your pain medication but you’re too young.” So I have to wish I were hit by a speeding bus every day, multiple times a day until I’m 65 and had zero ability to make a life for myself?!? Make that make sense! I can’t even see myself making it to 40 or next week for that matter because after 20+ years, my pain has drifted into every aspect of my life and set it on fire. My therapist gently stated that that type of thinking is a weakness and stretching is the answer 🤷🏽‍♀️.

I did find a PM provider who will see me to try some new medicines and make a “very small” adjustment to a pain medication after years of zero changes and not asking for it. I know, something is better than nothing but the totality of pain and all it encompasses is REAL. It’s fucking depressing.

Maybe you guys can share…how old are you and how long ago did your pain journey start? What’s the diagnosis? Do you have PM help or have they sent you out to sea? If you’re not comfortable sharing your age, share how long your journey has been.

I’m 38, and as of June it’s been 20 years.

You matter…just sayin’ :)

My Dr retired. Now I am on my third doctor. They took away my medications.

I'm now unstable.

I'm really tired of this.

I'm not going to fight these Drs.

Dolly Parton admitted that she didn't take care of herself when Dean died.

I've decided that I am not going to pursue any future medical treatment.

They simply don't care and took away my mental health medicine.

If they don't care about my mental health or my physical well being, then I can't function at all.

It really pisses me off when healthy people say this and I usually attack them back and that doesn't do anything. What ways do you guys respond to this that shows them that what they said was mean and that we do in fact are trying harder than they ever could

I had a failed back surgery and have bad disc in my neck I have been taking oxy 7.5 and I asked my dr for something stronger he told me try buprenorphine it doesn’t work and it making feel sick and messing with my stomach my current medication work I would just like for him to up the dosage without being label as a addict thanks ?

Hi everyone. I’ve been burdened with chronic migraines for the past five years. I’m a senior in highschool now and my pain forces me to be absent a LOT, making academics really difficult. It obviously also impedes on other various aspects of life. I was just looking for some insight on how others who face similar issues stay sane. I get so frustrated with the world because it feels like my life is being stolen from right out of my feet. There is nothing I wish more than to just be normal. Any tips?

For me, it feels almost certain that this pain will never heal. There is no medication to ease the symptoms, no antibiotics I can use due to resistance, and the medicine I want to get has been discontinued. My body has also been damaged by side effects, so I can't even continue treatment. Please don't ask what disease it is—if you are curious, you can find out by looking at my profile.
My life has collapsed, and I can barely manage daily activities. I cry every single day. I'm just waiting for the WHO and CDC to address this issue. Every part of my life is a mess. If I have to spend the rest of my life suffering like this for no meaning at all, I don't want to live anymore.

​

I've been off opioids since January, having weaned myself off due to my pm doc being a total Richard head. I reported him after he put blatant lies in my medical record. So I've been relying on the last few Toradol I have left and only use every few months or so.

Today I was on my feet for 1.5 hours. Ten minutes is usually my limit and since I had some yard work that's been put off for too long, I took a tablet and got to work. It wasn't long before my back was protesting, loudly. But I really needed to get this done.

Went to put some cut branches in the pile and tripped over the rain drain gutter. I landed mostly on my right side, wrenching my knee, hip, back and shoulder in the process. There were quite a few scrapes also as I fell on the concrete sidewalk.

Now, I'm in so much pain that the Toradol isn't making a difference and even though I haven't eaten today, food is the last thing on my mind. But, life goes on for husband and dog and maybe I'll get to relax later.

Hurting all day, every day, is bad enough without adding injuries on top. Crap.

I was worried about what woukd happen when mu muscles became so tight anf mangled that they passed the point of excessive pain and dysfunction to causing actual damage to other parts...

I just sent thud message to mu dr....

"My enhanced case manager is msking me reach out, i am losing the ability to eat, or at least chew. My jaw pops snd locks and if I eat things like chips or things requiring work, it gets really bad.

I just had what felt like anf explosion in my temple, i couldn't see out of me left eye for a sec, there was a loud cracking crunching sound, burning diwn into my neck, niw my ears are ringing and left side of face is kinda numb.

I cand adlfford to get messages any more its been several months and mu muclesvare so tight and fucked up, they are pulling everything out if place"

Im noy lookin forward to this next stage of life

I'm so fucking exhausted from being in constant pain All the fucking time. I can't remember feeling comfortable and sleeping all night. I look around at the world falling apart and feel like I'm in hell. If this is life than I hate it

I really want to see that new Nathan Fielder documentary, but it’s 3 hours and sitting that long will kill my back and enrage sciatica. Any recommendations for a portable heating pad? Would also be helpful to have for car rides and such. Thanks in advance.

Edit: would prefer something that can stay warm for awhile vs the hand warmer type things

I feel like I’m going insane. I can barely make it through the work day, even a really easy schedule with over an hour for a break. I’m just in too much pain. I can’t function like this. There’s no possible way I’ll be able to make a career or a living of any kind like this. I feel like I’m dying. I want to be dead. I cant do this much longer

Say someone is on oxycodone and developed a tolerance and decides to switch to a different class of opioids.

The goal would be to experience better pain relief from the new medication , while lowering tolerance to the old medication you were on before so it works better once you're back on it.

Has anyone successfully done this? What were you on and what medication did you move to?

Absolutely love this film. And the delivery of this one word reply was just on point.

Story about why he was so depressed, hilarious.

I’ve been in a flare for 5 days. I wake up (with no memory of falling asleep) hoping today will be better. Ahhh!! Someone just asked how I’m doing. I was honest. Miserable horrible exhausted irritable suicidal. If this torture continues I’m gone. A person can only take so much.

Hi everyone 33M, my doctor was puzzled by my unremarkable MRI result. He initially diagnosed me with Lumbar Radicalopathy and now MPS. I had alternating deep ache (left to righ) pain in hip, glutes, front of thighs, back of thighs, calves, legs and feet. There is no electric feeling just deep ache. It's been a year already and symptoms are still there and sometimes flaring up.

I was recently involved in an accident which really messed up my left side. It left me with pretty bad nerve damage in my left arm. I’ve been in absolute debilitating pain for 5 weeks. My wife has had to dress me, tie my shoes, help me on and off the toilet. Its put me in a bad place mentally. It feels like my arm has been lit on fire and set in a trash compactor. I can barely turn a doorknob with it. The doctors say it will eventually resolve itself, thank god. It has made me think of people in constant pain for years with no end in sight. I really hope all of you are doing well and find some relief from this hell.

or the days leading up, if it took a while. I’ll go first but I’m not good at being brief.

At 13, when I started high school, I began getting a chronic bothersome ache between my shoulder blades. It bothered me most in the morning when I woke up, enough that I asked not to go to school. In the afternoon, I also struggled to stay comfortable in my seat because my school had a hard wooden chairs.

My mom took me to my family doctor many times, but she often brushed it off as growing pains, pain caused from a heavier school bag, and even said maybe I was just a whiner. She prescribed Advil and Tylenol, which did not work. I was sent to physiotherapy, which did not help either.

Finally, at 16, I had an appointment at the Shriners Hospital. They took an x-ray and diagnosed me the same day. I had mild scoliosis, an S-curve, and something about 27 degrees. When they showed my x-ray, I felt my stomach drop. It was the most terrifying thing I had ever seen at that moment. It looked like my spine was a complete S, and I immediately panicked and thought I would need immediate surgery.

They told me I was too old for bracing as I was done growing, and said I couldn’t come back for another annual appointment because I would be 18. We asked what I could do for pain, and they said do whatever makes you feel better. Today I am 38, and take horse doses of Dilaudid and amitriptyline to manage my pain.

I get drug tested every 3 months or so by my pain doctor. I’m on pregabalin is why, I assume.

I had a klonopin prescription years ago and kept some of the pills for emergencies (invasive procedures and severe panic attacks). Today I’m getting an MRI which gives me severe anxiety, I’ve been dreading it since I scheduled the appointment. I’m taking 1mg klonopin for this, I don’t get tested again for 2 months.

It is in my prescription records, but I doubt it will still be in my system for my next test.

I do not abuse pharmaceuticals whatsoever. I’m scared this could affect my pain management but I still cannot get this MRI without freaking out if I don’t take meds.

Should I be honest and tell them even if it doesn’t show up? Idk I’m scared

Things are still gonna be very hard in the future, but I wanted to let you all know that we won the elections. Even after so many things were agaisn't us.

Those were awful days, I had many migraine atacks (on the first election day I actually thought I was gonna die) and it felt like everything was gonna crumble. I couldn't do a lot in out fight because of the pain (and other mental issues) but we all did our best.

Again sorry if it's too unrelated, I just wanted to update that post on a happy note.