Do you think it had an effect on your selective mutism ? What is your story ?

I've heard this sentence the past few years now, and I honestly wanna ask "Why would you say that?!"

Ever since my teacher talked to my mother about not being able to participate during class, that's the only thing I'm hearing. I got diagnosed with selective mutism at 16 y/o (which was way overdo), people constantly try to tell me they experienced the same thing when they were a child.

My mother, my older sisters, past teachers etc.

(even my speech therapist but she would know it the best, i hope)

And every time I just want to burst into tears. It feels so invalidating to my feelings.

Shyness isn't the same as selective mutism!!

Did you get diagnosed SM? No? Then why say that?

Can you talk with cashiers, teachers, speak up when there's a problem? Yes? Oh, it feels awkward because you don't have any social skills?

Well, guess what:

I can't talk at all!

I can't go to the toilet, answer the phone, greet the cashier, I can't speak up when I get a paper cut and need a band-aid, I can't do presentations, I can't even answer simple questions!

It just feels so disrespectful. I don't go around telling people with fears and traumatic experiences to just 'get over with it'.

Why are my family members and acquaintances so... egoistic?

I'm not just shy like 'everybody else' is. I have a diagnosed anxiety disorder. It's so tiring to hear everyone talk shit to me and can't even correct them!

Hello everyone! I don't even know how to put everything that is on my mind into words but I'll try. I've never made any post or a comment online anywhere on the internet so I'm quite nervous about this.

So, let me please tell you about my story. I was diagnosed with selective mutism as a little kid but unfortunately I haven't been really treated with it. I've always struggled to be social and since kindergarten my communication has been very limited outside of my home. I talk basically only with my parents even now in my early 20s. I think I've gotten used to it but I still feel quite bad sometimes. I also think that I have some really negative beliefs about myself so that definitely doesn't help me.

My experience with people has been generally positive. People have usually treated me with kindness even though I haven't been able to give much back. I even made a friend or two in school but it wasn't sustainable due to my difficulties. I've also met a really kind person online and they've helped me quite a lot with some parts of struggles. I'm really grateful I got to meet them.

I started talking with AI a lot starting last year and I think it's quite possible that I have talked more with AI than with any real person over that time. It helps me put thoughts into words and even talk about things that would be impossible for me to talk about in real life. At the same time I can make myself quite miserable by talking with it and that happens a lot to me.

I don't even know why exactly I'm making this post. Maybe I just want to do something differently this time and this is a way for me to prove to myself that I can do it. Anyways, thank you all for reading this.

I think I can count this as a little social success too since this is my first post ever! 🙂

I am more curious than anything, but if you normally speak to yourself, when you are in a state of mutism can you find the ability to speak to yourself?

I've found that if I'm alone I can but it really depends on when and why I am in that state. But I was curious about everyone else's experience.

Hi folks,
I'm not sure how mutism related topics this is or if it is more an anxiety issue for me. I would like to learn to do different voices and generally get some more control over how I speak a I have a little control over pitch and loudness when I rarely speak to someone.
But trying to do some voice exercises scares me hugely for some reason.
And I am curious if someone is in a similar situation or has solved it.

Just some background: I am diagnosed with autism. Not diagnosed with ADHD but i suspect i also have it. I first had selective mutism when i was 12. It was caused by my mother's abuse. I used to be a loud hyperactive child when i was around 5-7 years old, and my ADHD was active. My mother abused me to suppress my hyperactivity and make me quiet and behaved.

When i was a 14 year old teenager, i overcame my selective mutism, but it wasn't chosen and was caused by peer pressure in high school. When i spoke, my ADHD got active again, and i became a loud hyperactive teenager. My mother and other authority figures abused me again to suppress my hyperactivity and make me quiet and behaved (Example: My mother put me in a psych ward and gave me meds to make me quiet and behaved, labeling my speech and hyperactivity as "anger issues"). Now that i am 22, my selective mutism came back.

Whenever i tell this to AIs, AIs always misunderstand and twist my selective mutism as "grey rock method" "information diet" "choosing to not speak" "strategic silence", which is absolutely not true. It's not chosen, it is involuntary where i can't speak to my mother and her enablers even when i need/want to speak due to fear that my mother will punish me if i speak. I stopped using AI because of this. It makes so many mistakes (or lies), then it acts like it's the one who should make decisions for me rather than myself, so i'm the one who paid the price for AI's mistakes/lies.

People also misunderstand my selective mutism as me "not wanting to speak", which is again not true. It not a choice, it is involuntary.

Anyone else had your selective mutism misunderstood?

I totally embarrassed myself at the doctors office I tried to get help for my sa but idk if that’s normal she told me why am I here if u have social anxiety how did u get into 12 grade and ur talking to me rn so what’s the problem? I was so embarrassed I was literally stuttering to her but am I being a drama queen?

This probably doesn't class as selective mutism but this subreddit was recommended and this might align with some of your experiences, so maybe people here will have some advice?

Hi, I'm curious to hear different experiences and perspectives from those of you who have both selective mutism and autism (diagnosed or suspected). Do you think you benefit (or think you would benefit) from having a formal diagnosis of autism on top of selective mutism? If so, how? Is it mostly emotional (e.g., affirming your experience) or are there structural benefits (like better support in school)?

My daughter is 3.5 y.o. and is currently on a waitlist to be evaluated for selective mutism. The goal being to get support in place by the time she starts school in the spring. My partner wants to push for an autism evaluation when we see the psychologist, but I'm unconvinced it would result in a meaningful change in how she is supported at school (we anticipate struggles with social anxiety and overstimulation, but not academics or behavior). When we toured her school, I noticed several kids wearing ear defenders and there is a designated quiet area for kids who need a break.

For context, I have crippling social anxiety and (undiagnosed) autism. I personally don't feel a need to seek a diagnosis, but I have several friends for whom a late diagnosis was important validation. However, I know very few women who had an autism diagnosis during their school years and those who did (hopefully) had a different experience 20 years ago than what is typical now.

Thanks!

How do you work a job like this? Workplace is the worst for me. I got my first job when I was 16 and didn't know about my problem. I was bullied and harassed by everyone until I got fired. Now I'm 29 and use gig apps but they're unreliable. I have not been diagnosed with SM but I know I got it. I'm not sure how to get diagnosed either. I have no money and no insurance. So what job could I get without having to speak? How would I explain this to the company? I can talk ok during the interview but not while working. Also I have sensitivity issues, I need wear headphones or ear plugs because I'm very sensitive to noise so that's a problem as well. I'm stuck and have no idea what job to look for and how I would explain it. Any advice?

I was a very quiet child and probably would have been diagnosed as selective mutism since I just didn’t like to talk to people I didn’t know, but now I’m 24 I’m pretty confident I don’t have selective mutism but I’m still not completely “normal” I guess, I’ll explain;

I can interact with new people well enough, sometimes pretty confidently depending on the vibe of the person, but when I am consistently around people I am not fully comfortable with (family in law and colleagues at work) my whole personality changes. Around them, I am normally always very very quiet to the point they think something is wrong with me or that I’m upset. I don’t exactly feel anxious, I just don’t have the urge to interact whatsoever I guess. I wish I wasn’t this way though, it’s like I wish I wanted to interact but I just don’t. I still talk when spoken to but I never initiate conversation and give one word responses.

Even with an old boss I had for 3 years who was actually really great and worked closely with every single day, I was always very quiet around him. I always wished I wasn’t, I wanted to interact with him but I simply just didn’t.

When I’m home and comfortable I am very up beat and chatty, but it’s like something in my brain just completely switches off depending on the environment

Is there anything similar that could cause this? I really don’t understand why I am this way but I don’t like it

Buonasera a tutti, sono preoccupata. Mia figlia che ha 18 anni da qualche anno ha mutismo selettivo ( che io però non conoscevo ) e da un anno ha mutismo assoluto. Vocalizza. Penso sia dovuto alla diagnosi di autismo ricevuta due anni fa, al liceo che anche se amato le e' impegnativo ed alla ormai assenza del padre. L' anno scolastico scorso poi ha avuto burnout, ora sembra più tranquilla ma non parla con nessuno da un anno. Avevo pensato anche ad una risonanza magnetica ma temo di peggiorare la cosa. Sono preoccupata. Cosa mi consigliate ? Ovviamente ormai le parlo normalmente ( non le dico mai...rispondi? Per dire ) grazie a tutti

anyone else feel so sad about how they grew up?

i was know as the quiet kid or the kid who didn’t talk and nothing was ever done about it. i never had friends or a social life.

im 24, and things aren’t very different. no friends. closed off, scared of intimacy. it sucks. i’ve been like this since i was maybe 6 years old. maybe im broken. i’ll never fit it anywhere.

Hi, I’m a 16 yo girl from Finland and I want to know how it was to get diagnosed for autism. My dad is autistic and so is my older sister and I’m looking to get a diagnosis since the odds of me having it is pretty high due to symptom related stuff along with just my general personality. So, how hard was it to get into that?

I have struggled with social anxiety for most of my life, and unfortunately, it has only gotten worse as I have grown older. I have always believed in natural approaches to healing and managing my health. However, my anxiety has reached a point where it is significantly affecting my ability to communicate. I also struggle with selective mutism, and I have noticed that I sometimes speak much louder than I intend to because, in my mind, I feel as though people are not actually hearing what I am saying. I genuinely want to understand why this is happening and what I can do to help myself. I am committed to finding natural, effective ways to manage my anxiety because I do not want to rely on medication, especially if it means taking it for the rest of my life. My ultimate goal is to regain confidence in myself, communicate comfortably, and find a sense of peace within my everyday life.

ive missed out on so much, selective mutism limits my life so much, im 20 and have never had friends or a relationship, i couldn't go to school, i cant work, i cant leave the house

i feel so stuck. theres so much i wish i could do with my life but i cant because i cant talk

feeling so depressed about it at the moment, im so lonely and im sad ive missed out on so much, i dont think things will get better for me

Eu sempre fui muito fechada na escola. Inicialmente, só conversava com crianças da minha idade com quem eu tinha afinidade, como meus primos e alguns amigos da escola.

Eu nunca falava com meus tios nem com meus avós. Simplesmente não conseguia me comunicar diretamente com eles. Quando estava na presença dos meus avós, por exemplo, eu conseguia conversar com meus pais, mas não com eles. Era estranho.

Conforme fui crescendo, a situação na escola piorou. Eu não falava com mais ninguém, nem com professores, alunos, amigos ou colegas. Fiquei sem falar na escola dos 9 aos 16 anos.

Sofri muito bullying e era a aluna excluída de todos os grupos. Dava para contar nos dedos os amigos que eu tinha e, mesmo assim, não conseguia me comunicar verbalmente com eles.

Eu não respondia à chamada, apenas balançava a cabeça para dizer "sim" ou "não". Quando alguém me perguntava: "Amanda, por que você não fala?", eu simplesmente não respondia. E, mesmo que conseguisse responder, não saberia explicar o motivo.

Todo início de ano letivo, eu prometia a mim mesma que finalmente iria falar, que acabaria com o bullying e com aquele pesadelo. Mas nunca conseguia. Sempre sentia um medo descomunal, e a mesma situação se repetia ano após ano.

Conheci meu namorado na escola e, por incrível que pareça, com ele eu conversava normalmente, assim como com os amigos dele.

Mas havia um detalhe interessante: ninguém da minha sala, ou qualquer pessoa com quem eu não costumava falar, poderia me ver conversando com meu namorado. Afinal, essas pessoas ouviriam a minha voz, e isso, para mim, era um verdadeiro pesadelo.

Então, eu criava uma espécie de esquema na minha cabeça: só podia conversar com pessoas que não sabiam que eu não falava. E, se essa pessoa fosse amiga de alguém com quem eu não conseguia falar, aí complicava tudo!

Quando essas duas pessoas estavam juntas e uma delas falava comigo, era uma situação de xeque-mate para mim. Eu simplesmente não sabia como agir.

Tentava fingir que não estava interessada na conversa, como se estivesse apenas quietinha por vontade própria. Normalmente, acabava saindo de perto para evitar a situação.

Agi assim durante anos, até que, um dia, finalmente tomei coragem.

No terceiro ano do ensino médio, respondi "presente" durante a chamada.

Eu me senti extremamente bem! E, para falar a verdade, nem foi tudo aquilo que eu imaginava.

Achava que as pessoas ficariam em cima de mim, fazendo perguntas ou chamando outras pessoas para mostrar que eu finalmente estava falando. Mas, na verdade, foi apenas mais um dia normal.

Depois daquele dia, passei a conversar normalmente com todo mundo da escola, todos os dias. Foi como se um peso enorme tivesse saído das minhas costas.

Quanto aos meus tios e avós, conforme fui ficando mais velha, também comecei a conversar normalmente com eles. Acho que, de alguma forma, meu cérebro foi deixando para trás todo aquele bloqueio que eu tinha em relação à fala.

Foi como se eu simplesmente tivesse me "curado" do mutismo seletivo à medida que fui crescendo.

Mas algumas sequelas permaneceram. Hoje tenho fobia social e sinto muita ansiedade em praticamente qualquer interação em público.

I of course know it isn’t actually gone and I’m not really sure what changed, but his confidence has blossomed. He’s still shy and slow to warm up, but now he’s going up to kids he doesn’t know, trying to play with them, and calling them all his friends. Even with adults too lately. He started asking for playdates and does amazing at them. But the issue is, he really isn’t understanding that not all kids want to play with someone they don’t know. He sees kids running around playing and tries to join in, I explain he needs to introduce himself first and ask if they want to play. Then when he does try, some kids just continue playing and don’t really pay mind to him so I’ve been explaining that in those situations it’s best to walk away and try to find someone else to play with. But he just wants to keep trying anyways and I’m afraid of this crushing his confidence and him regressing because of it 😞 How else can I explain this to him? He just turned 4 last month and I’m trying to find the best way to explain to him experiencing rejection is just part of making friends sometimes!

Not sure if this is relatable but this doesn’t really happen to me outside of that, maybe on a rare occasion. I guess I just get extra anxious and can’t talk at all. Like I can but I really don’t want to and sometimes I try to anyway and it just isn’t really going for me. On occasion if it’s stressful outside of that I’ll go very quiet (im a loud chatty person.. very loud) and I’ll just like shut off and space out but I get like double anxious when people try to talk to me and I’m scared even more to make them hate me for not talking so maybe I’ll say a short sentence and just hope they go away… do i even have selective mutism or was this a misdiagnosis

My 8 year old daughter is on fluoxetine 2.5 ml since few months. She is having hair fall not sure if its due to fluoxetine or any other reason… have anyone experienced?

2 posts ago I mentioned that I wasn’t able to wave hi to the first teacher. But I found the perfect opportunity, after class he was walking by me and I just waved bye. Then during the art class at the end the professor went to another room, but I leave early.

And I didn’t want to leave until I waved bye to her also.

And then when waiting in the hallway someone asked me if I was taking a music class. I froze and shook me head. So next time I’ll probably just wait in the classroom.

Both my parents said yes it was a win. It felt good to wave bye. But at the same time my mind always goes like “by the time the semester is over and next semester comes it’s always just as hard”.

I don’t know what to feel. I feel happy that I finally got to wave to the teacher bye. But sometimes basic things feel weird to proud of. Because once I get comfortable with a professor then it’s easier.

Also I wrote in my notebook that I would like to not have my self portrait up, because I do not want people to look at me, also I drew scars on the bottom.

So she lead me to the where she hung it. But I forgot to bring my notebook in the hallway, so I tried to say thank you, but it came out as just “tha-“, but thankfully she understood. The hallway was empty and I feel comfortable with the teacher so that’s why I was able to do that.

I never know how to feel. Like it felt really awesome to finally be able to wave hi to the one professor. And I want to feel like it’s a win.

The hope that things could get better isn’t as strong, but it’s still there.

What makes that a win though?
Do you guys also think it’s a win?

I’m so tired now though. I need to rest. All of those interactions drained me.

Hi everyone. I’d love to hear from parents whose children have experienced selective mutism or similar difficulties.
Our daughter has just turned five. She was born in the Netherlands, where we live. We’re both from Poland and speak Polish at home. She attends a Dutch school and spends most of the day in a Dutch-speaking environment.
We’ve noticed that she often goes quiet when someone she doesn’t know, or rarely sees, speaks to her. She seems embarrassed or frightened. It doesn’t appear to depend on the language: it happens with both Dutch- and Polish-speaking people. Sometimes she even feels shy about talking to her grandmother or aunt on FaceTime.
When we visit Poland, she initially doesn’t speak to the family. After a while, she becomes more comfortable and talks freely, argues, and even gets cheeky. It can also vary with other people: one day she may not answer a parent who speaks to her, but the following week she’ll approach them herself and ask if she can come over to play with their child.
At school, the teachers say she doesn’t talk much. She has stayed at the same level for another year because it was difficult to assess her progress accurately, although she isn’t behind the other children in terms of what she knows. When she needs to say that something hurts or that she needs the toilet, she can speak. The teacher at her Polish school also noticed that she rarely speaks, but understands everything and communicates nonverbally.
She is very outgoing during play and can immediately involve a new person—for example, by taking them by the hand and leading them into a game. But she often responds only by nodding and doesn’t say anything herself. We have seen her talk with her friends when we’re there.
We consulted a speech therapist, who felt that the difficulty probably isn’t due to her not understanding Dutch or having trouble speaking it, but rather to being afraid to speak. We were referred to a child psychologist because of a possible diagnosis of selective mutism. Our daughter immediately invited the new professionals to play, but didn’t speak to them. We’re now waiting for a suitable programme.
We’re worried, but don’t know what might have caused this. As far as we know, she hasn’t experienced any trauma. She has never told us that anyone has been unkind to her, and her teachers haven’t noticed anything either. She usually comes home from school happy, says she had a good day, and we can see that she has friends.
Has anyone had a similar experience? What were diagnosis and support like for your child? What helped, and was there anything you found best to avoid? We’d really appreciate hearing your experiences. Text translated in chat gpt.